STORIES
Life by the Hour: Thoughts on Viral Time
We’re measuring life in hours these days, and sometimes in smaller increments.
Living Less Urgently with Parkinson’s Disease
Lately, I feel the need to make what’s left of my life less urgent.
Seeing Adversity from the Back of a Sanctuary
Sitting at the back of the sanctuary, as I typically do, I think about how I got here.
On Pandemics and Loneliness
We knew it would happen but somehow temporarily reasoned it away.
Having Parkinson’s is Political
This is a timely conversation for people to have, as opposed to allowing their discomfort to keep them silent.
My Parkinson’s Landscape
Parkinson’s is not always the only challenge.
On ‘Embracing the Suck’ with Parkinson’s Disease
Brené’s genius is that she recognizes that most of us live with pervasive shame, which ultimately quells our courage and prevents the kind of vulnerability that offers more joy.
Sex and Chronic Illness: Letting Worlds Collide
One thing that never has to change is our dedication to our total selves...
Parkinson’s at Work: On Reslience and Purpose
Secrets maintain enormous power over those who hold them.
Going Public with Your Parkinson’s Diagnosis
Few decisions feel more personal or crucial than deciding whether to disclose a serious medical condition.
Buck’s Adventures in Parkinson’s: The Nest “Smart” Thermostat
How smart do you have to be to know that someone is shaking right in front of your sensor?
On the Clock: A Parkinson’s Perspective
Having Parkinson’s tempts you to become a timekeeper if not a clock-watcher.
The Two Brothers of Parkinson’s
Recently I’ve come to know the two brothers of Parkinson’s, although I can’t say that I have been pleased to make their acquaintance.
Dear Ozzy, Keep Dreaming!
Dear Ozzy, It’s 1981 and I’m in the 8th grade. I spend a lot of time in my basement listening to your new record...
We Have Our Sh%t…and Each Other
We need to remind ourselves that we’re all in this life together...
The Iliad and the Albatross: On Foolish Optimism, Humility, and Heating Pads
Some of us who may seem, on the surface, to have it all figured out don’t.
A Decade of Living with Young Onset Parkinson’s
"I believe in going until I can't.... Parkinson's is viewed as a disease of diminishment, but i'm not sure it has to be."
Two Questions for Those Living with Parkinson’s (and Anyone Else)
Life changes with a chronic illness, but a life with Parkinson’s is still a life.
Lenses of Strength: On Truly Seeing Persons with Disabilities
When does one assume the status of disabled? I have thought about this question since my Parkinson’s diagnosis over three years ago.
Parkinson’s, Faces, and Sharing Our Humanity
The mask Parkinson’s forces us to wear is a cruel one. When we feel intensely and desperately want to share our emotions, we might be incapable.
“How Did You Know You Have Parkinson’s?”
Ultimately, finding out I have Parkinson’s required adhering to my belief that knowing the truth is better than running from it.
Getting to Grateful with Parkinson’s
I think a lot about gratitude these days.
Chronic Illness and Sojourning with Loss
Life endures amid our losses and illness.