STORIES
Empowered By Parkinson’s Documentary: A Panel Q & A
A panel of six people involved with the 2020 documentary film Empowered By Parkinson's discuss the film and life with Parkinson's disease.
The Cuff and I
Hungry for touch during our pandemic, I am intoxicated by a newly purchased digital blood pressure cuff.
A Letter to My Daughter on Resilience
People have the ability to build something called resilience, to bounce back from a difficult experience or crisis and to be as strong, or stronger.
Five Questions for Larry Gifford
You are loved. The sooner you begin to share the diagnosis, the more people will be able to support you.
We Can Heal Before Being Cured
You mentioned that you are struggling with how best to cope with your illness...
A Teacher, Some Learners, and Some Lessons
In his fifteenth year as an instructor, he leads his class one last time.
On Barking Dogs, Vanity, and Parkinson’s
I’ve discovered that those of us who live with Parkinson’s are not all that different from anyone else. With time, all of us come face-to-face with our imperfections.
Seasons of My Young Onset Parkinson’s
As we pull up to the curb and park on a hot summer day in 2003, it catches my eye before anything else.
A Time to Talk: Parkinson’s and Friendship
“A friend is person with whom I may be sincere. Before [whom] I may think aloud.”
Suggestions for People Newly Diagnosed with Parkinson’s Disease
Stan Wedel speaks about his Parkinson's diagnosis and helpful things he's learned to do to manage it and live well.
FIVE QUESTIONS FOR ERIC EYRE
Boxing seemed counterintuitive. You’re going to hit people with a neurological disease upside the head? Wasn’t that the cause of Muhammad Ali’s Parkinson’s? I decided to give it a shot.
Why I Prefer Illness to Disease
When we focus on disease, we tend to look at a person objectively, at a distance, and primarily in terms of the physical body and its dysfunction.
Let Tomorrow Come Tomorrow
It’s early in 2017, a few months after my Parkinson’s diagnosis, and I keep trying to learn my way out of the illness. I’ve never had difficulty with living in my head.
FIVE QUESTIONS FOR WILLIAM ONDO, M.D.
There are few medical conditions that have as many investigational therapeutic options as Parkinson's disease.
A New Normal? On Faces, Masks, and Zoom
Feeling Zoomed-out on many days, I have wondered if we could all use a collective Zoomectomy!
On Illness, Drive, Dignity, and Dreams
Still Got It declares the large orange font placed off to the side of his left shoulder. A handsome and fit older man, he’s just pulled a full bag of groceries from the back of his SUV,
On Tires and Tests: Doing What You Can Do
The four of us have just left Frankie’s house and gotten on MoPac Expressway when we hear it: thump, thump, thump, thump, thump, thump, thump…
A Letter to My Daughter on Determination
I often think back to that spring day in 2017, when you were nine and I had not yet told you about my having Parkinson’s disease; hardly anyone knew.
Five Questions for Rhonda Foulds
What has surprised me most about living with PD is the large amount of activities I am still capable of doing.
Life by the Hour: Thoughts on Viral Time
We’re measuring life in hours these days, and sometimes in smaller increments.
Living Less Urgently with Parkinson’s Disease
Lately, I feel the need to make what’s left of my life less urgent.
Seeing Adversity from the Back of a Sanctuary
Sitting at the back of the sanctuary, as I typically do, I think about how I got here.
On Pandemics and Loneliness
We knew it would happen but somehow temporarily reasoned it away.