STORIES
The Button
Before Parkinson’s, my fingers and hands worked better than they do now.
Feeling Welcome
Respect also happens because everyone is a teacher, a knowledge sharer, and a reference for others.
Expanding the Dot
At 2:41 on a Friday afternoon in 2018, I was strolling through my office, perfectly healthy, and had a stroke.
Falling Short and Punching Back
Falling short is a good term to describe how PD works.
More Mayo, Please!
We stand on hallowed ground and watch sacred acts unfold.
Remembering Our Strengths
Remembering our strengths and opportunities helps me feel less anxious about the future.
Five Years
The day before, Tracey minded me in a brief text that, “Tomorrow is your anniversary.”
Darkness and Light
We get in the car and start the one-mile trip home as the new day’s sun reveals a now clear sky.
Deep Brain Stimulation: A New Path
Then the neurosurgeon started counting down from 15 and I heard a loud humming sound...
A Conversation with Soania Mathur, M.D.
Dr. Soania Mathur is a family physician living outside of Toronto, Ontario, Canada who was diagnosed with Young-Onset Parkinson's Disease at age 28.
A Personal Journey Through Deep Brain Stimulation (DBS) Surgery: Part 2
On July 22, 2021, after so much planning...the day of my scheduled DBS surgery finally arrived.
A Personal Journey Through Deep Brain Stimulation (DBS) Surgery (Part 1)
There was no way I was going to miss this opportunity to potentially give myself a new life.
Finding your Personal Best
Parkie is an ill-mannered scoundrel. He comes uninvited to your party...
Riding the Wave
He floats on his back in the green glassy lake, his feet sticking out of the water and his toes gripping the rubber tread on the slick fiberglass board.
Epidemics and Vaccinations
As we work ourselves into this century, we need to figure out how to increase community confidence in vaccinations.
A Conversation with Eric Eyre, Recipient of the Pulitzer Prize
I sat down with Eric Eyre recently to chat about life with PD...
Sandcastles
Our lives are like sandcastles...
More Keys for Living Well with Parkinson’s
Here, I want to share a few more keys that give me access to spaces I want to inhabit...
Five Keys for Living Well with Parkinson’s
I started thinking about keys as they relate to a life with Parkinson’s...
A Conversation with Lisa Keefauver, MSW — Grief and Empathy Activist!
"Our work in grief is to rewrite and live into a new story we are co-creating."
Keeping Score with the Animal: 12-1-1
I have been thinking about my “record” against Parkinson’s, or what I call, “The Animal.”
A Conversation with Brian Grant
"I'll never shy away from putting myself on the line if it's going to help people."
A Conversation with Melani Dizon (Davis Phinney Foundation)
"Surround yourself with positive people."