STORIES
Crafting a Parkinson’s Story
“I want you to remember something. It’s really important. People experience this disease differently. It’s not the same for everyone.” Dr. T, my neurologist, then pauses, looks me in the eye, and with a Texan’s directness and authenticity says, “Don’t let someone else’s story become…
Before I Had Parkinson’s
Many people know of Parkinson’s disease as a movement disorder, but there is a whole bag full of symptoms that you can experience.
A Stronger Voice
Like many things Parkinsonian, the changes came on slowly and subtly, but they didn't relent.
Spiritually Muddled
The 140 saints, cast in stone and perched atop the wrapping colonnade, add religious heft, while the developmentally delayed young girl in a wheelchair and the middle-aged blind man standing across the pool add humanity.
A Marathon, Not a Sprint
It’s 4:45 a.m. on Sunday, eleven days after my Parkinson's diagnosis at the age of 48. I awake to the sound of the door lock’s firm click as Tracey leaves our hotel room on Manhattan’s Upper West Side.
The Things People Say
“You look great!” “Parkinson’s? You don’t look sick.” “Oh I am sorry. I will pray for you.” “I have heard that the oil of the Mongolian skunk cures Parkinson’s” …and other things well-meaning people say. If you are living with Parkinson’s, you have heard…
Accepting My Parkinson’s
In this video, Ned Neuhaus reflects on his journey toward accepting a diagnosis of Parkinson’s disease and the freedom it has given him. Photo by Wil Stewart on Unsplash Ned Neuhaus earned a Bachelor’s in Accountancy from the University of Illinois, is a CPA, and…
I Won’t Give Up!
I never in a million years thought I would be diagnosed with YOPD at the age of 38, in the prime of my career, and with 4 year old twins.
Navigating When and How to Share Your Parkinson’s Diagnosis
In this video, Bill Bucklew reflects on sharing a PD diagnosis. Photo by rawpixel.com from Pexels…
Parenting with Parkinson’s Disease – Lessons Learned
I was 27 years old, having just completed my residency in family medicine and expecting my first child, when I received my diagnosis of Young Onset Parkinson’s Disease.
The PD Strikes Back: Life with, and after, Deep Brain Stimulation
Our Hero sits on a surgical bed, a man standing in front of him with a barber’s electric clippers in hand. Man informs Our Hero that he is about to give him “The $500 Haircut.”