STORIES
Deciding to Trust
Her large, compassionate eyes blink slowly and in earnest just above her surgical mask.
The Long Hallways of Illness
As we sit together in the lobby, watching other cancer patients and their people come and go, I have an even deeper sense of the weight of illness.
Breathing In and Out
Parkinson’s Disease (PD) sometimes sends us answers we don’t expect...
Chronic Illness: Candor, Conversation, and Coping
It has been nearly 15 years and my wishes have not changed one iota.
Men and Parkinson’s
Recently, I had to pleasure of hosting a conversation for the Davis Phinney Foundation on the topic of Men and Parkinson's.
An Update on “The Only Day We Have” — A Documentary on Young-Onset Parkinson’s
For several months, Vanessa and I have worked on a new film that features stories of several people living with young-onset Parkinson's or YOPD.
Stepping Outside the Cave
It’s early morning, and my friend Michael and I sit at a corner table inside Jo’s Coffee...
Playing Offense
I have come to see that, with Parkinson’s, most of the time we play defense
A Conversation with Davis Phinney
In this conversation with Davis Phinney, we discuss the challenges and opportunities that come with Parkinson's disease.
A Conversation with Veronique Enos Kaefer and Liz Diemer of The Michael J. Fox Foundation
A conversation about better treatments, cures, and community.
Commencement
It’s a Saturday morning, the day of Commencement, and I stand before the crowd gathered to honor E4Texas graduates.
Shield Walls
Our goal is to survive the next battle and fall back if needed to fight another day.
Parkinson’s and Palliative Care
Palliative care is an interdisciplinary medical caregiving approach aimed at optimizing quality of life and mitigating suffering.
A Future with Parkinson’s (from “The Only Day We Have”)
Keri Shaw and I talk about the future in this scene from "The Only Day We Have."
A Conversation with Rodolfo Savica, M.D., Ph.D.
We discuss his views on young-onset Parkinson's disease and how it differs from later-onset Parkinson's.
We All Need Support (A scene from “The Only Day We Have”)
Brian Grant and I reflect on the need we have to give and receive support from one another.
New Math
My kids grew up in the age of “new math.”
A Bucket and a Pot of Gold
This is what happens when those with PD get together.
Introducing “The Only Day We Have”
In this video, filmmaker Vanessa Reiser and I talk about our forthcoming documentary...
Slow Down. Rise Up. Hold On. Let Go.
“It’s harder to get up than I realized.”
“The Only Day We Have” — A Documentary in Progress
I’m excited to tell you about my new project, a documentary focusing on young-onset Parkinson’s.
On Jumping to the Skies
Harry sits across the round table in my campus office just after lunchtime.
A Conversation with Richelle Flanagan: Women and Parkinson’s
There's a lot more we can do...